Personal Tragedy Gives Rare Disease Patient New Resolve
Dan Seftick thought his biggest challenge in life was his rare disease, dermatomyositis. When his son Greg tragically died in an avalanche while hiking in Grand Tetons National Park, he discovered...
View ArticleMuscle Disease Patients Gather to Learn About Myositis
The Myositis Association (TMA) hosts their 2017 Annual Patient Conference September 7-10 at the Sheraton San Diego Hotel and Marina. With more than 80 presentations and nearly 500 myositis patients,...
View ArticleNew Classification Criteria for Inflammatory Myopathies a Breakthrough
The ability to diagnose myositis diseases and treat them properly just improved immensely with the publication of new, evidence-based classification criteria.
View ArticleMay is Myositis Awareness Month
Myositis Awareness Month brings attention to a rare autoimmune disease of the muscle that can cause disability for children and adults.
View ArticleThe Myositis Association Updates and Upgrades Its Web Presence
The Myositis Association announces the launch of its newly redesigned website, making it easier for visitors to access evidence-based information about all forms of the rare autoimmune muscle disease...
View ArticleThe Myositis Association Welcomes New Executive Director
The Myositis Association is pleased to announce the appointment of Mary McGowan as Executive Director.
View ArticleMuscle Disease Patients Gather to Learn About Myositis
TMA hosts its Annual Patient Conference at the Louisville Marriott Downtown on September 6-9. With more than 500 myositis patients and family members in attendance, this conference promises to be the...
View ArticleThe Myositis Association announces 2018 research awards
TMA is pleased to announce they have awarded three new myositis research grants.
View ArticleThe Myositis Association appoints new members to its Medical Advisory Board
The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of three new...
View ArticleThe Myositis Association appoints new members to the Board of Directors
The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of five new...
View ArticleThe Myositis Association Celebrates Rare
Together with other rare disease organizations, The Myositis Association is encouraging those who live with myositis diseases to Celebrate Your Rare by speaking out about the challenges they face and...
View ArticlePeter Frampton diagnosed with rare muscle disease inclusion body myositis
Legendary guitarist Peter Frampton announced Saturday that he has a rare, debilitating muscle disease called inclusion body myositis.
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Occupational Therapy for Myositis
The Myositis Association celebrated National Occupational Therapy Month in April with a conversation with Dr. Malin Regardt, an occupational therapist on TMA's Medical Advisory Board.
View ArticleMyositis, a rare muscular inflammatory disease that often goes undiagnosed or...
Awareness campaign kicking off Myositis Awareness Month aims to ensure the over 75,000 people with the disease are diagnosed and get treated
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